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Vital Info


Nicole (Lady Of The Larynx) (ladyofthelarynx)


May 27, 2011


San Francisco, California


August 4, 1951


Cancer Survivor

Cancer Info


Larunx Cancer


Invasive, poorly differentiated non-keratinizing squamous cell carcinoma w/basaloid features.


December 14, 2010


Stage 2


No


Radiation Therapy


It's so expensive: monetarily, physically, and emotionally.


That humanity transcends even cancer


Be love.


Erbitux iv sessions once per week thankfully had less severe side effects than most chemo therapies.


CA Pacific Medical Center - San Francisco


March 31, 2011


Stats


Posts: 20
Photos: 6
Events: 1
My Supporters: 56
I Support: 74
Comments: 1603
Views: 15303
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Nicole (Lady of the larynx)'s Cancer Blog

Cats aren't in it for the cancer

I’m fairly certain that all the major researchers in radiology have been feline fanciers. I have nothing to base this on, but I like believing it anyway.

When my radiation oncologist said he was referring me to get pretreatment PET/CAT scans, I wasn’t worried. I had no idea what PET/CAT meant, but my husband Don and I did have pet cats. Silly me, the PET (or domesticated) scan stands for “Positron Emission Tomography”; and the CAT (or feline) scan stands for “Computerized Axial Tomography”. ......At home we call them “Tonto” the male orange tabby, and “Skittle” the female siamese.

Living with cats, you learn really fast that cats are God’s way of saying, “You have cancer; so what? Where’s my kibble?” When you’re a cat person, there is no “cancer card” nor force of nature that will stop your cats from making you trip when you’re desperate to get to the bathroom. Of course they’re also cuddly purr monsters; it’s just that cats don’t hand out hall passes, to anyone.

Since finishing treatments almost a year ago, I’ve been trying to regain my sense of balance. Unfortunately, I can’t count on kitty cooperation; in fact their flair for balance creativity is often at odds with my vertical well being. Tonto will suddenly be in a mood to “own” my legs in mid step; and Skittle bounds around without warning, vanquishing one invisible foe after another. ....You would not believe how fast invisible corpses pile up in her wake; it’s a miracle neither Don nor I have tripped and fallen.

Still, there have been moments during this cancer fight when I’ve actually taken inspiration from Skittle’s daring warrior readiness. I especially admire her determination to remain ever vigilant and, when necessary, battle her tail into submission. Poor dear has no choice; her tail viciously taunts her, from somewhere behind her own butt. And though victory is never assured Skittle fearlessly claws and bites away, until her tail is caught and swears allegiance, for now. Tonto, on the other hand, will have nothing to do with tail wars, nor anything else which might interfere with aloof napping. When he’s not busy owning everything in sight, Tonto’s agenda is to communicate “F__k you.” loud and clear, while curled up in a dead sleep.

To be honest, there are many offsets to Skittle’s inspirational qualities, most notably her recent change in napping behavior. She has decided that my laptop is the best bed in the entire world. When I’m working at the keyboard, Skittle will circle my chair and find the right moment to force her way up onto my lap. Then I have to type at arm’s length to keep her from curling up on my keyboard. For her it’s great sport, waiting till I’m out of the room to deftly claim territory and type away, with her butt. ....We suspect Skittle wants her own email account, and may be trying to upload videos of herself and Tonto grooming.

I wouldn’t mind her butt entries, except we have opposite tastes. I like my emails without frills, while she prefers flair and Yahoo “Liam Stationery”. Thanks to Skittle, suddenly one day “Stationery” was being added to every e-mail I composed. It wasn’t until writing to my step-mom about her sister-n-law’s cancer that I noticed “Liam: Crowd Surfing” framed the bottom of the screen. Beyond unsettling, our little Skittle.

Then there was the folder fiasco, when Skittle decided to rename my “Medical” folder, to “2mbvfguj tc70i789vnmj7”. To give me no-brainer access, Don had put the folder on my opening screen. Little did I suspect that it would thus be a piece of cake, or rather butt work, for Skittle to rename my “Medical” folder, as she curled up for a keypad nap. Thankfully Don was able to retrieve and restore my “Medical” folder name, before I lost access to all my letters to doctors, about radiation side effects, requests for pain meds, and migraine meds, etc.

And so I wonder; if the radiologists ever got wind of some real pet cat stories, they might consider new initials for those PET/CAT scans.

[[]] [[Yes,_there_will_be_scanning.]] Yes_there_will_be_scanning

7 people like this.
Kathysman sent you a hug.

I can imagine your cats doing all those things lol. They seem like fun to have around, even though they require attention. Great story!

This is so funny! As the “owner” (read “slave”) of four cats myself, I could totally relate to all of this. i will be looking for Tonto and Skittle to show up on Youtube one of these days, complete with catfood ads on the side. Hugs (cat hair not optional)! Ann
PS Be grateful that your cat only sleeps on your keyboard…a friend of mine got hers peed on one day when her cat decided that she’d been paying a little too much attention to the computer.

 Oh crap, kitty peeing on a keyboard. I hope your friend & her cat are able to work things out.
I do have a feeling that one day, cats everywhere will finally attack our computers. End the competition for good.

Four cats? You are definitely the “cat’s meow”, Ann.

Great post as always Nicole. Your cats are entertaining. Mine has a habit of hiding behind my shower curtain every morning. Max apparently has no idea that his large body makes the shower curtain bulge and his paws are clearly visible and ready to pounce. I still pretend to be surprised when he leaps out of his hiding spot at me.

I especially love Skittle’s keyboarding skills. We could all benefit from some nice stationary every once in awhile.

Hugs to you,

 Thanks for your comments, Cathy.
That sounds so darling, your Max cat behind the shower curtain, waiting to “attack” you.

LOVE this post. I am step-mom to 2 cats who re-entered my home when my daughter moved back in. Needless to say, they were a package deal, so when mw expressed his dismay about having the critters all over (his) our furniture, I reassured that it would be okay (somehow). Now, Jack (aka Fat Jack) only comes downstairs when he hears mw come home and tries with all his might to get on his chest or perhaps down his throat. Sydney is like your Skittle. I’m pretty sure he has broken the sound barrier a couple of times in his efforts to be in three rooms at once. I am quite impressed with the butt typing. Syd just likes to wait until I’m in bed and then will make off with one of the pieces of jewelry I have just completed and left on the jumble that is my work table. I sold two and had them ready for packaging one night and the next morning I only had one. I looked in every dumb place I could think of to no avail, when my daughter came upstairs and asked if I was missing something. It seems Sydney brought it to her like some bird he had killed and left it next to her bed while she slept.
What a funny, well written piece!
Thank you :)
xoxo

Aw shucks Debbie; thanks for the thumbs up.
Kitty step-mom; I love it. ...Fat Jack, trying to make friends (own) MW, sweet!
And Sydney the Cat Burglar, hilarious.
Actually there is a famous kitty burglar in the SF Bay Area. I’m sure he’s on YouTube; he’s stolen from all the neighbors, tons of clothes. Too funny.
Oh, nice to know Sydney’s got taste, in jewelry no less.  

DOG scan?

 Yes; toooo funny Helen.
DOG scan. DOG scan. DOG scan.

It is definitely true that our cats own us, not the other way around. I have two and my husband and I joke that we are here just to serve them. Sadly, it’s true, and we have accepted that. I love my cats!

Martha

 Well, you know they say: Dogs have owners; cats have staff.

Since Skittle is so talented, I think you should expand her office prowess—buy her a SCANNER. Can’t you envision a tasteful scan of Skittle’s butt? You could frame her work and do a whole series to be displayed wherever folks are waiting for their PET/CAT scans around the world… this could CATapult an awesome career for brave Skittle!?

 Oh lordy, that is to funny to contemplate: The Skittle Butt-Scanner Series. The “SBS Experience” for short.
Thanks for thinking of her future, dear Cooperpup.

this was thoroughly entertaining to read. I hope you have been well.

 I’m really glad you enjoyed this Emily.

So cute! And so true! I have to fight for the keyboard sometimes! and they like to interject their ideas with their butts or paws. I have had to act like a contortionist to type around them. My cats like to sit on the back of my chair, between me and the keyboard, on my lap and ontop of the printer. I have one that is in constant need of petting and he keeps flopping over onto his back and rubbing his head under my chin as I try to type..I have one cat..Lucy who during the days I couldn’t get out of bed, slept next to me the whole time watching me..there were times, I had all 5 of them just sitting around me staring at me..like..should we wake her? when is she getting up? where’s the kibble..exactly..love my cats..always was a dog person until a mother stray dropped off a litter and then, that is when it all began..got a divorce, he got the dogs, I got the cats, and I got the better deal..never looking back! Thanks for sharing! Made my day! Hope all is well with you..I have one outdoor cat who is determined to take me down however..I have a new dance step that I have come up with that allows me to stay out of harms way..and he seems to like it too..because we do it every morning during feeding time..lol! Have a great day and hope all is well with you! Thanks for sharing!

Wow, five cats? You get a Giant Purr Award, Eileen.
That’s a very funny image of all 5 kitties sitting there, waiting for you to wake up.
Thanks for sharing your amusing meows.

Ha! This is the best post I’ve read yet! I too have a cat who wants to curl up on m keyboard, punishing me by making me type at arm’s length if I don’t let her type her own emails. I really should get her a BFAC blog. Then maybe she’d let me keep up my own!
Hugs dear Lady.

 Lol. Kitty’s own BFAC blog.
Thanks for your comments, dear One.
Hugs to you.

What beauties! I’m a cat lady! We have 3 – Taylor, who has been with us almost 7 years; JoJo who is 7 years old, but only with us for a year; and Mary Jane, who is about a year old and has been with us for about 9 months. I love my babies…esp. Taylor! MJ has been known to trip me up…actually happened last night – hurt my left shoulder some because I tried to catch myself so I wouldn’t fall (I didn’t fall…just hurt my shoulder…)

Gotta love kitties!

 Oh Diane, I so agree, gotta love those kitty babies.
Even thought the only time my husband, & then myself, have ever been to the ER was due to cats. ...Ha, ha. (Maybe I’ll do a post some day.)

You made me laugh outloud on a Monday Nicole! Your cats sound very much like the two we have at our house, Skitzy and Louie. Skitzy is a LARGE (she prefers “fluffy”) Maine Coon who likes to sleep on my laptop as well. If I step away for even a minute, she is on it and visiting websites I didn’t even know existed;) Louie is a pet rescue who had actually been shot before he was rescued. He is a docile guy who sleeps with us every night. I guess we don’t keep cats as pets…they keep us:) Wouldn’t trade them for anything.

 So glad this made you laugh, AshleyAnn; thanks for letting me know.
Yeah, wouldn’t trade them for anything. That is so sweet to know that Louie & Skitzy have such a good mom. ...Who would shoot a cat?
.....Yes, websites we didn’t know existed, but cats do. What the….?

They ar adorable. I have always been partial to orange/red cats.
Cats can be soothing to a boggled mind.
Maybe the radiologist should have a cat service so any radiology patient can borrow a cat!

 Adorable idea, Sandjo. Borrow kitties, as part of the Radiation services team.
Sweet!

On Sunday a friend gave me a book to read called “Making Rounds with Oscar: The Extraordinary Gift of an Ordinary Cat” (by David Dosa, M.D.)Haven’t read it yet, but I’ll pass it on to you if I enjoy it—gotta love the idea of a kitty at bedside, though!

Is that the famous nursing home cat? Sounds like a great read.  

ahh, they are adorable. I have two kitties as well. I would not survive without there love and challenge. The younger one has almost toppled me a few times in her wake and going down stairs happens to be her favourite time to do it! She would not like it if I were to not be here to feed and stoop and scoop her box. After all, do men do this job? Well that’s like asking do they change diapers…. I wouldn’t have it any other way. They amuse us and that is worth working for. Thanks for your lovely post

So glad you enjoyed this Louise.
Actually, my loving husband Don has taken over most of the care, including the poop scooping. However, that doesn’t mean he gets a pass. Tonto & Skittle seem as hell-bent on toppling him over, as much as me.
Who knows why we love them regardless. Guess we all have a bit of Feline Insnaity & there’s never likely to be a cure. ...We’ll just have to keep worshiping these purr balls, till the end of our kibble days.

Love your kitties! I have 3…sigh…Nicole…again I just want to say what an inspiration you are and you give of yourself so generously..to everyone…you are really wonderful..blessings to you…Lori

 Lori, Thank you so much for your too kind comments.
I am humbled by your appreciation.
Hugs to you.

Nicole where are you?? You haven’t posted in a long time and I sure have missed you! Are you ok?
Just wanted you to know I miss you and have been thinking about you!
Lots of Love!

You are really sweet for asking, Kathyo. I’ve just finished a spell of follow-up visits and tests; and I found it rather exhausting.
But I’ve been volunteering and working and now trying to catch up with blogs.
Thanks again for your lovely words.
I am working on another post, coming soon to your favorite BFAC website.
Hugs to you Kathyyo.  

And the THANK YOU award goes to .......

In the spirit of awards season and Valentine’s Day I’d like to give special recognition to what knocked me into decisive See-Doctor mode. Of course this led to getting biopsied and diagnosed, and eventually my starring role as an extra in the cancer wars.

So I’m here today, not quite a year post-treatment, to finally present my THANK YOU award.

The nominees are:
1) Recurring sore throat- best performance of a potential life-ending condition.
2) Lingering vocal problems- best choral rendition of “This needs to be checked out.”
3) Nagging voice in my head- best unnerving soundtrack
4) Michael Douglas- best solo “be here now” publicity tour

DRUM ROLL ........And the THANK YOU Award goes to ..........Michael Douglas!

Without further ado, the award follows:
c/o Further Films, Inc.
100 Universal City Plaza, Bldg. 1320, Suite 4G
Universal City, CA 91608

“Dear Michael Douglas,

I’m writing to thank you for saving my life. ...Ok, so you didn’t jump in the river to save me from drowning, nor pull me out of a burning building. But you did go on the David Letterman show and talk about your throat cancer in the fall of 2010.

Naturally you were there to promote your movie “Wall Street: Money Never Sleeps”. You were also there starring in your own life-threatening throat cancer “reality series”. And you were willing to talk about it. You held my full attention as you described your symptoms; like that tricky sore throat, same as I’d been feeling on and off for months.

My throat doctor had seen nothing suspicious that summer. I got the old “Come back if it gets worse.” shrug off. And of course it didn’t get worse; it just kept hanging on, like a bad relationship. I told myself it wasn’t serious, and pretended that I actually had a choice to ride this out.

Fast forward to that October night, when I just happened to turn on Letterman and see you calmly describing what could have been my throat. I thought you were unbelievably generous for describing something so personal and vulnerable to the entire world.

That night I decided to go back to the throat doctor. By early December the tumor on my larynx had been biopsied and I was on my way to a treatment plan. There were many times during radiation that I had doubts about making it through all 7 weeks. Then I’d remind myself that you had gone through this and more.

Though at least a year overdue, my “Thank You” seems to have picked up a little steam. Besides untold gratitude for your candor, I’d also like to thank Catherine Zeta-Jones, and the rest of your family and friends who stood by you in this cancer war.

From the heart of the Mission Dist. and the streets of San Francisco, I remain a grateful survivor and Michael Douglas fan.” ************************

Does anyone else have a THANK YOU award they’d like to share? Is there a “sweetheart” in your life who got you out of that procrastination rut?

6 people like this.
3 people sent you a hug.

Love it, Nicole – did you send your letter? My thank-you goes to the tumour itself – it got sick of sitting in the dark being ignored so had a coming out party which involved drama – finally I had no choice other than get it to the hospital. I thank my body for manifesting the disease somewhere where it could be got at without too much fuss and the tumour for managing its boundaries / keeping the misguided cells in check (not letting them wander too far). Big gratitude to the surgeon who went in and did what he could to remove the tumour, to the trainee nurse who washed my back with a warm flannel when I was weak and confined to a wheelchair after blood loss, to the snr doc who sat on my bed and said, it is shit, there is nothing else to say, to the radio oncology team, to the young intern doc who looked like Tom Cruise and had made an art of finding a vein, to the taxi driver who drove me to my daily radiation appts., to my son who was there an whom I love so much and of whom I am so proud, to my cats and dog who kept me company without making any demands, to my friend Ruth who played scrabble with me on fb nearly every day for 18 mths, to my friend Clare who was always there on skype with wisdom and wit, to Tim, Matthew, Tom, Donna, Jackie, Lynn, Hilary, Peter who surprised me with gifts in the mail … it goes on – I would be up there weeping and humbled! thank-you, Nicole for encouraging me to take a moment to voice gratitude! love to you xx

Janet, Thank you so much for commenting and sharing your “Thanks you”(s).
I love how you thank the tumor itself! Inspiration!
Your lovely notes of appreciation weave together so perfectly. ...A joy to read.
Hugs, Nicole

I forgot to thank Nadine for driving me to that first appt with the oncology department – thank-you Nadine!

P.S. I did mail my “Thank you” to Michael Douglas, around Valentine’s Day.  

What great posts from both of you! You should send the letter for sure Nicole! Will be reflecting on our thank you award for sure now. Like you Janet…our Teddy the tumor had his own coming out party so the doctors couldn’t ignore him. To that we are thankful or we would have just received another round of ‘here…let’s try this pill now’. Have a great day everyone. Cold snowy day here. Think I’ll stay in and catchup with my blog thoughts :-)

Thanks so much Kenny & Sammy for commenting. ...”Teddy the tumor”, what a great tribute.
Makes me smile every time I think of that name.
Hugs, Nicole

 Yes we get lots of laughs and comments over Teddy the tonsil tumor. The doctors knew we had the right spirit to get thru this. And he had a friend. Lenny the lymph node tumor and Ally the aloe Vera plant. :) I’ve been stalling at posting his pictures on our blogger blog because they are pretty graphic. I think it’s time now since he was a big part of our journey and it’s part of the story to remember. And to the people who think there was a magic cure button we pressed at the last day of treatment (I wish) we want to show a little more of what a ride it has been. Xx

Go for it!
You totally rock at naming things. ...I think that means: if you can name it, it can’t kill ya. (Wouldn’t that be splendid?)
Hugs and more Hugs, Nicole  

Congrats to”Mr Douglas”

PS We had the same surgeon.

That was really good Nicole, and worthy of many awards. That is amazing you were watching David Letterman to hear Michael Douglas cancer dignosis to move you to take action. You should send the letter to MD. Happy Anniversary or Birthday!

Thanks for your comments, Paul. You distilled it in a snap. It was indeed an amazing “cosmic alignment”.
I did mail my letter to Mr. Douglas.
Hugs, Nicole
 

This is great, Nicole, and I’m sure Mr. Douglas will appreciate knowing that his willingness to speak out about his cancer had a direct effect on someone and may have saved their life. I have a similar story.

Back in 1993, I worked with a woman who never talked much about her health. She was absent from work one day and no one questioned it. It seems that she had been having some severe headaches and vision problems and had taken the day off to see her brother, who just happened to be an opthalmologist. Late that day, I happened to be the only person in the office and a call came in from her. What she told me next blew me away. Upon exam, her brother had seen something of concern and sent her for a stat CT scan which revealed a brain tumor. As I tried to gather myself and take all this in, she told me about some of the symptoms she’d been having, such as the headaches, nausea, eye problems. After we were finished talking, I thought all of these things sounded very familiar, as I had been dealing with some of the same issues in the past months, including cognitive difficulties. Fast forward a couple of months, during which time she had surgery to remove what could be taken of the tumor and was given a poor prognosis, I finally went to see my primary care doctor, who thought I was probably experiencing migraines. Just to rule out anything else, he sent me for a CT scan. My husband took me to the hospital and we laughed all the way, making jokes about hoping there was actually a brain in my head! Don’t you know, that CT scan showed that I had a severe case of hydrocephalus, so bad that hardly any of my brain was visible because of all the fluid.

I won’t go on, as surgery patched me up and I’m still here to tell about it. Sadly, my friend did not have the same positive outcome as me, but I know she is smiling in heaven, knowing that she saved me from some dire consequences. Had it not been for her circumstances, I would have just kept putting off seeing anyone about those symptoms, possibly losing my eyesight or ability to walk or even my life. I have thanked her a million times over.

I have a feeling that our dearly departed Farrah Fawcett has saved some lives too, possibly mine. How I wish she was still here so I could write her a similar letter as you have to Michael Douglas.

Sorry to be so long-winded. I hope you are doing well and let’s all hope that Mr. Douglas is too!

Hugs—
Martha

Martha, Thank you for sharing this dear story; and I’m especially glad you took your time telling it full. Your friend was surely an angel, and you have certainly honored her well.

And I absolutely agree that our lovely departed Farrah no doubt helped save lives.
Hugs, Nicole

 That was lovely, Martha. :)

This is terrific, Nicole. I hope Mr. Douglas wrote back to you. Celebrities who share their stories do so in part because they know they can reach many people. My thank you goes to my endocrinologist, with whom I had an initial appointment for osteoporosis. She asked me three questions, watched me talk, put her fingers on my thyroid, and changed my life. I am not grateful to the various primary care providers I had seen in the ten or so years this cancer had probably been developing, none of whom ever examined my neck.

It’s good to see you here, Nicole. Stay well.
Love,
Andrea

I love your endocrinologist, Andrea! ...And thumbs down on those primary care docs who missed the mark for you.
My “thank you” to Michael Douglas got mailed around Valentine’s Day. Who knows…...
Hugs, Nicole

Ah Michael….I read the article in one of the magazines the first day at my set up for radiation….I heard he was back to smoking again…don’t know if that’s true or not…you better check on him. Nice that you are here a year later and continue that forward motion in your healing and life….

Thanks for your comments Pat C!
Yes, that smoking thing is hard to knock off permanently.
...Still, ever forward, like you say.
Hugs, Nicole  

Unfortunately I also thank him for being such a huge ass and minimizing the disease and treatment, every time he was asked it was always aww it wasnt a big deal Im back maging movies just a bump in the road his wife Publicly lashed out originially at his doctors for missing it sorry I cant share your support of him he didnt do a thing to help us and hasnt since hasnt said a word about it, nothing about promoting awareness NADA just wants to forget it ever happened like I forgot he was an actor lol sorry

 Totally agree with you Mike! It really irked me as how the media all of the sudden gave him the status for Oral cancer awareness and I also feel he made it to be a small bump in the road, not a big deal! to me that says to Joe public if you want cancer pick Tonsil/Throat cancer cause it is an easy one! It’s like all the doctors who say ” Oh you are so lucky you got throat cancer…. cause it is curable !
Hugs Val

Dear Mike Rada, Thanks for saying how you feel.
I really appreciate your honesty!

I felt I had a “cosmic debt”, so I wrote this post to clean my slate.
Hugs, Nicole

Oh my goodness I love your writing and posts! You are so creative and fun! Thank you for what you add. Now on to the subject I will be working on that one!

 Thank you Kathyo, for your kind comments. Good luck finding your “Thank You” inspiration.
Hugs, Nicole

I hope you sent that letter! And for me, I’m like Janet. Thank goodness my tumor got bored in my colon, ate its way out, and went exploring the neighborhood. The resulting case of peritonitis kicked my illness into high gear, going from “very sick with ambiguous symptoms and no one can figure out what’s going on” to “at death’s door, must get emergency surgery, oh crap, she has cancer”. If that hadn’t happened, I think I would have just continued slowly going downhill, until it was too late. So thanks to that nasty little bastard!

 Dear Ann, Guess I also have to thank that “nasty little bastard” tumor on your behalf. I’d hate to imagine never having been able to meet you.
As for thanking Michael Douglas, I did mail my letter shortly after I posted it here.
Thanks for your comments, sweetie.
Hugs, Nicole

Nicole You are my hero.. From the beginning when I first got here you have helped me every step of the way and I so appreciate you and all you have written to me. I didn’t have anyone like Micheal but I had you to help me thru it and that I am very grateful for. You really have made a huge difference in my life here and have helped me thru so much. Thankyou and Happy Valentines Day!

love Sabina:)

Dear Sabina, I so love your comments. I’ve been carrying them around in my heart for days; and I’ve finally had a chance to sit down & let you know.
I’m glad I’ve been able to make a positive difference for you. I feel that’s why we’ve each found our way here, to help each other out.
You are such a treasure yourself, Sabina; a hero in your own right.
I’m glad to know you.
Hugs, Nicole  

Very nice. Are you sending it to him :) I have an award I’d like to give. Mine has little to do with my diagnosis but everything to do with my fight. I want to give a best supporting award to my wife. Without her, I don’t know where I would be. God bless

Brian, How sweet to award your wife BEST SUPPORTING.
What a noble warrior you are.
I did mail my “thank you” letter shortly after I posted it here.
And thank you for your kind comments.
Hugs, Nicole  

Love it! Please tell me you sent it:) That’s awesome Nicole!

 Thanks for your comments, AshleyAnn.
I did mail my letter a day or so after I posted it here.
Hugs to you and John, Nicole

Hi Nicole:

This letter deserves an award for the best Thank you letter ever written! My thank you is to my OBGYN who found the tumor during a routine annual visit. Dr. Fe Mondragon is now my favorite doctor of all time and I owe her big time. She safely delivered both of my children following high risk pregnancies and made sure myself and babies to be were closely monitored from pregnancy until safe delivery.

Thank you for reminding me to send her a Thank you card or letter. I did Thank her in person but nothing feels as good as reading a personalized note.

Take Care!
Cathy

Cathy, your comments are utterly lovable. I’m so glad you enjoyed my “thank you” letter.
Your own appreciation to your Dr. Fe Mondragon is golden; I hope you send that card. ...And what’s not to love about that name?
Hugs to you Cathy, Nicole  

Nicole I am sorry but I have to disagree about Michael Douglas! I understand your point and appreciate that he got you and probably many others to go in and be checked because of symptoms you were having!

I on the other hand was finished my surgery/treatment for Tonsil cancer and feel he should have continued to use his celebrity to speak out about aTonsil and other Oral cancers. To me and people in my stage of healing it sounded like he got the cancer, had the treatment, is now cancer free …. done … fineto…. and has gotten completely back to normal… Since then he has NOT said a word, as if he has put it out of his mind and is now back to normal leading a perfectly normal life!

I think it is quite a difference from someone like Farrah Facett who even though the cancer beat she became such a strong spokesperson for Anal Cancer, and made it so Anal cancer can be spoken about and we don’t have to whisper about it, she has helped to take the stima off Anal cancer.! Michael J. Fox is another one who spoke up and has really helped in the fight of his disease. Mary Tyler Mooore for diabetes and the list goes on.

There is a stigma with Oral cancers too! As until lately they were cancers that only old men who smoked, or drank or chewed snoose got.
When I got my diagnosis in 2009 I had not heard of anyone having Tonsil Cancer. The doctors asked me the usual questions starting with “do you smoke and did you ever smoke?” I told them no and it had almost been 30 years since I did! They asked me if I was a drinker and I said No, I have the odd beer or Ceasar. Most alcohol has always made me sick after i1 or 2 drinks so I have never drank much. Two things I was tested for was HPV and Aids which both tests came back negative for me. The only thing that may have helped in me getting Tonsil cancer was the fact that I was always parinoid about dentists. I never had many problems for my teeth until a bad car accident in 2005, but I did have the odd issue. I do remember getting absesses twice and medicating myself with over the counter drugs till I could not handle it any more and would have to go to the dentist, where they would always give me something like valium to calm me down. I have no idea if my fear helped in me getting cancer or not as I have always been vidulant in good oral hygene because of my fear of dentists! The other thing is enviromental and the jury is still out on that one. I now know 8 people personally who have or have had Tonsil cancer in the area I live. Fort Saskatchewan is a small city of 19,000 people and there are 8 of us who have been diagnosed with stage 4 Tonsil cancer there and in the immediat vicinity around the city.That to me is huge and studies are being done as it is a big mining and plant area.

Sorry for my rant but in saying all of this I just do not feel that Michael douglas had or has the campassion to be noted as a spokesperson and thanked for all he has done.

I am thankful however that the Head and Neck cancers are finally being reconized as very serious fast growing cancers! This year in my area a lot of charitable mineys are finally going to these cancers. For instance proceeds to the Home lottery here ($100.00 tickets) is going to Hand N cancers. The Festival of Trees ( a huge charity with dinner and silent auctions)is going to H and N cancers.
January is now known as Manuary and is raising huge money for H and N cancers, and then of course the month of Apriol is Oral Cancer Aweareness month.

When Michael Douglas uses his celbrity for really helping in ther fight to stop these cancers that when I think he will deserve a thank you! Maybe he can start by pushing the HPV shots for our kids and grandkids since he had an HPV cancer , then I will thank him!
Hugs Always Val

Dear Valerie, You are phenomenal! 
(My letter to Mr. Douglas was to clear my cosmic debt. Were it not for that moment, I probably would have gone on to stage 3 or 4.)
That said, I ADORE your comments and the calling to a higher standard. I actually think this would make a terrific post, and inspire rich discussion about celebrities & cancer.
You are so right about celebrities like Farrah Fawcett, who go the extra distance and fight for the unpopular cancers.
Thank you for commenting so fearlessly and passionately. ...Take a bow, Valerie. I’m so glad your voice is always here; you speak so much for so many of us.
xoxo Nicole

I must say, I’m a bit surprised at the Michael Douglas anti fans down there. I enjoyed your letter and I suspect you are mailing it since you have the address. I would love to see the response if any. I do understand what they mean about the down-playing of what comes after the dx. I felt the same way when Guilana Rancic came out and then similarly said fa-la-la, all done, no more cancer. BUT, I wouldn’t mind if they never said another thing about their own journeys, as long as someone, like you, was inspired to go to the doctor because of what that “star” described. If that small part of the message is enough to save a life, it was the most important thing that person ever said.
So good for you, my love. I happen to be a Michael D fan myself, btw, but that doesn’t change my view at all.
THANK YOU and all of my supporters here, that hold on to me and keep me from floating away some days. I love the humor, the inspiration, and the love :)
xoxo

 I wouldn’t mind either Debbie if it slowed down the growth of the cancers or taken away stigmas that may be their but they don’t. Nicole like the rest of us already had the cancer. Not enough is being said or done to stop it from happening in the first place. I feel if Douglas joined in the fight of the Oral cancer Foundation like Rod Stewart, Steven Tyler and others his celebrity could make the difference. Last I read was that HPV was the cause of more Oral cancer today then smoking and drinking and because of this the average age has gone from 50 plus to 30 plus. If he really wanted to make a difference he would help somehow in the education of HPV because it has gotten out of hand! People listen to celebs as Nicole said and I think if they including Douglas got involved in the HPV crisis you would se the HPV cancers start to go down! Now that would be something to celebrate I think.
Hugs Val

Dear Debbie, Thanks so much for soothing my soul in my “thank you” reverie. I did mail my Michael Douglas letter soon after I posted it here.
And I am thankful everyday that you are here supporting me, and so many others. ...You do light up the room so well.
Hugs to your lovely self, xoxo

PS if you remember back when he did decide to come out about his cancer. The media had written about him looking very “gaunt.” Also in the few interviews about his cancer he did state that he was a very private person, so my question is would he have said anything at all or was it that he wanted to be in control and explaing his health issues. If it was the second reason I totaly agree with him and agree about being in control. Rod Stewart who had Thyroid Cancer is the spokes person for the Oral Cancer Foundation and has used his celebrity in helping the cause. Hugs again Val

On a nicer note! I will give my thank you award to my husband who I am the second of 2 wifes to have cancer! My story is happier then his first wife who died from Pancreatic cancer! He is the most compasionate, caring person I have ever known. To be able to get through his young wife dieing at 36 leaving him to raise a 7 and 9 year old,remarry to have cancer strike a second time to a second wife and totaly be there for me with no complaints through my 20 hour surgery , treatment, nd all my issues since including the brain tumours! He gets my big thank you award and he deserves it!
My second one would go to Dr. S for saving my life! enough said Hugs Val

 Three cheers for your husband, Valerie! What a sweet note of love to him.
And it’s really lovely to hear that he’s been singing one long love song for you.
Thank you for sharing this here, dear.
Hugs, Nicole

Dear Nicole;

My “Thank you Award,” goes to …drum roll…YOU!

For making me laugh, when I was feeling down, for always being here for me, and trying to understand.

It couldn’t go to a sweeter, Lady!

I am so glad you caught that Micheal Douglas interview!

Love Barb

Dear Barb, I’ve been so slow to give a round of thanks for all the wonderful comments, and especially yours.
I actually mailed my “Thank you” to Michael Douglas a day or 2 after posting it here.
It’s always a pleasure for me, if I can make you laugh.
Love & Hugs, Nicole  

 Hi Buddy;

I too, have been slow to return thanks to the wonderful comments! In your words, “No
Guilt.” Did you lose your pills! Ha! Ha!

Love Barb

P.S. How was that dinner?

Nah, didn’t need my “NO GUILT” pills; cosmic debt is different than guilt. ...Less anguish and shame. (Now there’s a couple I’d hate to have dinner with, Anguish & Shame.)  

 Ha! Ha! No kidding!

Love Barb

I’m catching up on blog notes. My award would go to the dctor that was pinch hitting for my family doctor.
I was glad Michael Douglas talked about it on national TV. It woudl be great if tonsil cancer get more TV reminders like breast and skin cancers.

And I was just finally catching up on replying to all the wonderful comments on my post, so your timing is perfect, Sandyjo. ...Perfect, I tells ya.
You get my vote for more tonsil cancer media awareness.
Thanks for sharing your appreciations, and your lucky doctor switch.
Hugs, Nicole
 

I am curious, did you get a response from Michael Douglas? I would hope so!
He may be a star and all of that BUT so are you wonderful lady!

 I’m as curious as you, if I’ll ever get a reply. Of course, if I do get a reply, I’ll definitely post it.
I did add a P.S. to my “Thank you”, explaining that I had posted it word for word on BFAC.

And now you’re making me blush, with the wonderful talk.

Nicole- you are a mess! lol- omg you make me spit coffee even if you’re not trying to be funny! Awesome posts!

Ah, I see you’ve been talking to my best buddy. And he has “Bad Attitude AIDS”, so he’s hardly one to be throwing around the “mess” talk.
Of course we met back in the day, on the San Francisco stand-up circuit, where I also met my husband. Thus, the first casualty of me getting cancer was ….doom and gloom.

Thanks so much for your comments Kerry! I’m so glad you enjoyed this.  

Indeed, there was. It was my friend Lynn, a physician, who basically told me to get my butt back on the phone to my family doc and remind her that I was high risk… and that I shouldn’t be in the normal waiting line for the referral to the ENT. Big award to Lynn. That was just the beginning. My award to her would be an essay of gratitude. I love her.

Nicole, I think of you pretty often. I hope you are well. I love how you reach out to me and others on BFAC. I love the way you present yourself as kind of quirky, but utterly genuine. I send you the biggest hug I can muster down to San Fran.

Dear 1, I’m loving your friend Lynn. Sometimes the naggers and behind-nudgers are the best heroes ever.

You are such a sweetie for asking how I’m doing. Vocal issues continue, so I still sound like Debra Winger with laryngitis. Plus various other minor issues, both age and treatment related. These days, my goal is to be more limber.

Your comments are utterly touching, and I’m rather overcome, in a really good way. Thank you for writing me, full out honest. ...I hope you feel a sense of the treasure you are.
Love that Hug you sent, back at you dear 1.
 

 Yes, limbering up! A couple of weeks ago I promised myself to either swim every day or do yoga, with more yoga than swimming, and I’ve been keeping that promise. It makes such a difference! Gaiam TV lets you pay 10$ a month and then stream ALL the yoga and fitness videos they ever produced, plus shorter tv episodes, and it is wonderful. My favourite instructors are Rodney Yee and Sean Corn. They have some good sessions for treating bad backs, opening hips, and such. xo!

 Yea us!
I love cheer leading. Thanks dear 1.
I try and cheer myself every step of the way; even rolling out my mat gets a cheer.
xo to you, Nicole







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